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Ehlers Danlos Support
What it feels like to walk with unstable joints
I didn't choose the spoonie life, the spoonie life chose me.
chronically-cute: Why Do I Hurt All Over, a novel by me
Going to the doctor and they tell you to just get a better night's sleep
Solidarity to all the chronically ill who spend our entire day self-censoring about how ill we really are, because we don't want to upset/annoy those around us.
chronicallysickchick: stimmyabby: I don’t “let my disability stop me”, it just *does* It’s almost as if it dis-ables me from doing things.
When a painkiller wears off...
When the painsomnia is so bad that I'm still awake at dawn...
spacejamonbluray: I feel like there’s a lot of emphasis with chronic illness on the people who are pushing through it, who suffer with smiles and that’s good and we deserve recognition when we can do that But here’s to those who don’t. Who can’t.
There's only two reactions to normal blood work results.
chronicillnesstruths: Sometimes I worry that people don’t get pain humor. Like, what my fellow #spoonies and I consider a joke, most people probably interpret as us trying to get attention, being horribly depressed, or we’re about to fall apart,
z0mbiitch: My special talents include: jumping to the worst conclusion possible and worrying about that thing for hours.
for-your-malice: The best part about having a chronic illness is getting to feel guilty about being sick all the time. Two thumbs up.
When my symptoms have no rhyme or reason...
thorxndor:since I’m 18 now I had to call the hospital myself to get test results and I was simply planning on saying that I had a blood test last week and if I could get the results back but when the woman answered I said “I want my blood back”
ehlersdanlossupport: I’m beyond exhausted yet I can’t sleep :(
ehlersdanlossupport: heyatleastitsnotcancer: It’s really hard to get out of bed after waking up when you know as soon as your feet hit the floor you’ll be in so much more pain. Perfectly explains my day today
thekidinme101: ehlersdanlossupport: Spoonie life but bedtimes stink!